Thursday, May 6, 2010

"tortellini" neck confirmed

We had our visit with the physical therapist yesterday and they confirmed Dr. R's dx of congenital muscular torticollis. They also reiterated what I had discovered, that there is a connection b/t hip dysplasia and torticollis. So, go figure our pretty girl would get the double whammy:(


PT gave us two excercises to do with her, recommended at each diaper change, ~5-6 times a day. We have to hold the pose for 30 seconds, so really it's just about 5 minutes of PT per day, for now. We also have to work up to 1 hour of tummy time. Good grief, that will be like pulling teeth. It doesn't have to happen all at once, but over the course of 24 hours, at least 1 hour has to be spent lying on her tummy. We also have to position her in ways that will allow lengthening and strengthening of the neck muscles. The advice at this link was almost word for word what PT suggested. http://hubpages.com/hub/How-to-Treat-Muscular-Torticollis-Naturally

We were told if we do everything they ask of us, the issue should correct itself in about 6 months.

Overall, they said hers is very minor and rated it a "5." They've seen as bad as "40" so that made me feel better. They also mentioned a VERY minor flat spot on her head. I freaked about this a little, but didn't say anything. I've always feared the helmets:(

Oh, and they busted our proud parent bubble by saying that she DOESN'T roll from back to belly. Since she can't get her arm out of the way, http://2.bp.blogspot.com/_U6IIDWZUaXg/S7neflnQHzI/AAAAAAAAAZg/SUIZdpyQMZY/s1600/IMG_0745.JPGit's not considered a roll. Oh well.


Lisa said...

you know, I really thought my LO has this but at her pedi appt. yesterday he didnt think so. Even though all the pics I see and desriptions I read sound a lot like her. hmmm.

It sounds like you have a good treatment plan in place!! Good luck!

Rebekah said...

You poor things! My friend's little boy had this, and after a couple months of PT, he was good to go! I hope it's not too bad on you (or her!).