Friday, July 20, 2012

some updates...

1) Connor had his follow-up ENT appt last week, which was his first one since Dan had been over-medicating him. I really went back and forth about whether to tell the dr about that, but in the end, I did. I'm not sure what I thought she was going to do...yell at me maybe, lol...but she chuckled at first, considering the original issue we had with Walgreens. She was extremely inerested to hear that he shows such improvement as the dose goes up, although she wasn't comfortable increasing him, based on weight. She said that's the first time she's seen such a direct response to increased dosing.

I finally got up the courage to ask about next steps/what will happen in the future. Ideally, this hemangioma will go away on it's on, and all we're currently doing is helping it to NOT get bigger where it might interfere with ears or throat. I asked if a minor surgery might be in the cards, and her response was that it would NOT be a minor surgery, based on the location of the hemangioma. The plan is to continue with the meds, hoping it goes away. If not, we could continue with the meds for YEARS, until he grows enough that the space she would be operating on is large enough to successfully complete the surgery.

2) Sophie seems to love her new daycare. I found the perfect place, which is a Center, but it runs out of a home, so it has the feel of a home daycare. Less institutional feeling. She's currently only going on Mon and Thurs, until a 3rd day opens. It's almost all girls, and they love doing all girly things. Dolls are everywhere:) Sophie was introduced to a sandbox for the first time this week, and cannot stop talking about it:) Looks like we'll be taking a trip to the beach next summer!

3) Her old sitter's husband had a mostly successful surgery. They don't believe it's cancer, but of course it's being tested. They weren't able to get it all, so are considering radiation to treat what was left. Apparently his vision improved significantly immediately after the surgery. VERY good news, so far.

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